COVID-19 Guidance for People Living with Hydrocephalus, Symptoms often diminish or disappear entirely once hydrocephalus is effectively treated for some individuals, but in many individualsÂ symptoms can persist at varying degrees and intensities, and may be permanent in some cases. If you qualify for Disability Allowance you may also get extra social welfare benefits with your payment and other supplementary welfare payments.. Budget 2021. What is the Compassionate Allowance program? Find out the attorney or advocate in your area who is responsible for the advertisement, click here. Calls may be auto-dialed/pre-recorded. … He is too young to be considered for mobility. Living with hydrocephalus In this page … What this section covers; How problems in everyday life can affect someone with hydrocephalus and those around them Shunt related issues; Questions you might have; What this section covers. Hydrocephalus is an abnormal accumulation of cerebrospinal fluid in the brain, which causes the ventricles to enlarge and the pressure inside the head to increase. I want to point out that the âRFC evaluation onlineâ link in your article comes up with an error. The SSI and SSDI programs require separate applications. Your doctor can download an RFC evaluation online and fill it out for you. She was denied 3 times and I just do not get it. This essentially means that while your application doesn’t qualify under standard SSD eligibility, you still meet the general requirements for receiving SSD benefits, based on your medical condition and the limitations it imposes on you. With the growing number of surgeries, came a large amount of scar tissue over the years. What Eye Problems Qualify For Disability Benefits? Qualifying for benefits will hinge on finding a listing that you can meet in the, Medically qualifying for children is different than qualifying for adults. So glad you have this on your site!! I am 31, and was diagnosed with hydrocephalus as an infant. How Severe Does my Arthritis Need to be to Qualify? If left untreated, hydrocephalus can be fatal. If You Have Arthritis, Can You Qualify for SSDI Benefits? If you live in a group home or nursing facility, your medical records from the facility will suffice. I’ve worked handyman jobs for years but now after 5 surgeries and an infection am unable to do that kind of work anymore due to restrictions. Where do I apply, im having a son living with hydrocephalus staying in Zimbabwe, Everyone with questions here or has been denied in the past should strongly consider getting an attorney to help. However I have been denied 3 times for my daughter. If you have a shunt inserted - you have a life-long disability. i HAVE BEEN DIAGNOSED AS HAVING HYDROCEPHALUS ABOUT 3-4 YEARS AGO. Hydrocephalus and SSA Disability Benefits Hydrocephalus is the accumulation of fluid in the brain which increases the pressure in the ventricles of the brain, potentially damaging the brain tissue. Your child will be able to qualify if he or she hasÂ non-compensatedÂ hydrocephalus. Youth Allowance for job seekers is an income support payment if you’re 21 or younger and looking for work, or temporarily unable to work. In order to qualify for benefits, you not only have to meet the disability criteria of the Blue Book but you also have to meet the financial requirements set forth for the program. The hydrocephalus must also cause intellectual or motor delays. Reading this article, I identify with a good portion of the symptoms listed. Iâve lost count of the revisions, but the last one was in 2005. So I’m asking if I qualify for SSDI. Supplemental Security Income (SSI) is a needs-based program for those who prove they are fully disabled. iT SEEMS I AM JUST GETTING WORSE. If I was born with hydrocephalus do I qualify for a section 8 housing ? Your doctor can download an, The SSI and SSDI programs require separate applications. I’ve been on anti-seizure meds since. While there is no dedicated listing for hydrocephalus, you may qualify by showing through medical records that your symptoms are equal in severity to one of the following listed impairments: Stroke or Traumatic Brain Injury â Section 11.04, Tumors of the head and neck â Section 13.02, Organic Mental Disorders â Section 12.02. Hydrocephalus, and Intellectual disability, profound Diseases related with Hydrocephalus and Intellectual disability, profound. Hydrocephalus, or “water on the brain,” is a condition associated with a buildup of cerebrospinal fluid (CSF) in or around the brain. I don’t want to just lie there and waste away. Neither of the adult forms of hydrocephalus are among the listings that appear in the Social Security Administration’s (SSA’s) “Blue Book”, which is the manual utilized by SSA staff in evaluating commonly disabling medical conditions for Social Security Disability (SSD) benefit eligibility. Related Services. Personal Independence Payments (PIP) were introduced in April 2013 replacing Disability Living Allowance (DLA) for new claimants aged 16 to 64. This works well for people like me who are on SSDI but not able to work full time in my chosen profession (in fact, I am working part-time in another profession all together). COVID-19 Guidance for People Living with Hydrocephalus. Hydrocephalus is a build-up of fluid on the brain. We need help getting jobs. 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